My name is Emilka. I was born on 26th July 2009 at 12:35am. I weighted 3.600 kg and was 57cm long. I was all fine until the day when a letter from the Genectics Hospital arrived saying that the doctors suspect I may be suffering from disease called cystic fibrosis (CF).
My parents could not believe it, because I was such a strong and healthy girl. Then, two weeks later, we had a phone call where a nice lady informed my mum about the positive result for cystic fibrosis (CF). With those words, our whole world collapsed. My parents took a long time to come to terms with it. CF is a genetic, and so far incurable, disease.
I am a cheerful and energetic child and I am always here, there and everywhere. Unluckily, I suffer from this terrible disease, of which symptoms we are trying to alleviate, by giving me various painkilling drugs, doing the inhalations and attending physiotherapy. Thanks to such treatment, I could enjoy my life longer.
We ask all people of good heart to help Emilka and us, her parents in the fight against Emilka’s disease,
Jacek and Monika Urbanik
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